Peace & Quiet

A rare occation, both asleep at once. I wasn't quite sure what to do with myself. Actually I went out shopping while mom stayed with the kids and when I got back this is what I found. Granny has the magic touch. The pillow cases were made by a group called Con Kerr Cancer or something like that, and they had tons of pillow cases so we let Elizabeth pick one out for her and Henry. She loves her train pillow case.

During dinner one night last week Elizabeth got to build her own fishing boat. He was very brave to let her hammer. She loved it though and was so excited to show off her boat and the windows, made of tape. Just one of the fun activities they have done at dinner. Two days ago she got to make bookmarks and read books with the girls from Delta Kappa something... :) They loved her, even though she was in a crabby mood.

Vampire Baby

We're in the clinic today getting more blood. I really wanted Henry to be a Vampire for Halloween, we just didn't get it together in time. He gets more blood than anyone I know. I am not sure how much of his blood is actually his! The Doctors started him on a new Hypoallergenic formula, no lactose, and thought it would help. But he spent most of the night puking and filling his diaper. yuck. Poor little guy. Doesn't help that he's got a cough, but he usually goes a few hours and then cough cough puke! I think we're gonna have to find a new formula.
I was getting a bit frustrated last night because he was not looking very good or feeling very good and I was wondering why with everything else going on does he need to get sick. I understand that he has a low immune system which leaves him suseptable to everything, but I just think it's sad and frustrating. No matter how hard you try to keep everything clean or washed or sanitary, he still picks up viruses from who knows where. I don't doubt the Lord and his plan for Henry and I know he's gonna go through a lot of stuff, but I just wish he didn't have to go through so much. At four this morning Henry woke up coughing and then puked, and I was getting so frustrated I couldn't go back to bed so I parked him in the stroller next to mom's bed and I got into the shower, got ready for our 8:30am appointment and then laid down to cuddle Elizabeth for a while. She's sooo cute! What a blessing she is in my life.
Alright enough complaining, we're waiting for blood, and I brought a movie along to watch so the time might pass quicker. On second thought I wish I had my book. Oh well. Hope every one has an enjoyable day. Hugs to our friends and family!

Doctor visit this morning at 7:30am. Elizabeth was all in favor of not getting dressed, and I was too tired to care. I'm a bit congested and coughing so I get to wear the attractive face masks. :) Now to keep Henry from getting sick again. The Doctors were very impressed with Elizabeth's ability to say stethascope, and that she knew we used it to listen to Henry's heart.

The Doctors are keeping Henry on the same Chemo for another eight weeks. His bone marrow test showed the same amount of LCH, which isn't great, but it isn't worse. So his body is holding it's own with out much chemo. They are moving back to full doses of chemo every two weeks. And since we found that he's lactose intolerant, he's on better formula to help him gain weight quickly without problems hopefully.

The Doctor just called and said he does have a virus that supresses his counts, so they may have to treat that if it's still growing, which means being admitted to the Hosptial for a while... but also something that can cause low counts. All things that help us treat him more effectively. So that's where we are today. Elizabeth is hiding under the table with the camera, better go rescue it before we get some crazy pictures or a broken camera. :)

Scrapbook stuff

These are the three bags of goodies I got from an angel! I'm so excited to use them in our scrapbooks. Thank you so much. Wish I could hang out with my neighbor and scrapbook for a few hours! :) Miss you guys. Much Love!