Daddy Daughter time

Elizabeth was soooo excited to see her daddy! She wouldn't leave his side when he got here. He wanted to go get his pj's on and Elizabeth followed him to the bathroom. Joel told her he had to go to the bathroom and she wanted to go with him. It was so cute. Then they cuddled all night every night. She loves her Daddy sooo much! Vivian, one of the ladies that works here, asked Elizabeth tonight where her daddy went, she said Alaska. With out my telling her. I only told her that Daddy had to go home to work. Pretty smart girl.

Henry had a rough day today, seemed to be in a bit of pain and nothing was making him feel better. But this evening he's feeling much better and happier. He was pulling himself out of the stroller, well trying to get out on his own it was a bit scary. He hasn't thrown up at all today which is great. Hopefully he'll start gaining weight quickly. He's already up to 8.24 kg. He needs to be at 9.5kg for them to take the NG tube out, not sure if they will at that point but we'll see. I'm afraid he won't want to eat anymore. However, he is enjoying a cookie right now.

Henry has his favorite blanket and two pacifires whenever he's grumpy. He loves that blanket, and he gets so excited when it comes out of the wash all clean. Such a cute boy.

Mom was doing some research about LCH and found a study done in Sydney, that says fractures in the bone are common and that they heal on their own. But because of the fractures they stop putting pressure on their legs. So while we've been worried about his loss of strength and mobility. With LCH it may be natural. The study also said something about five year prognosis... I don't think we'll be here for five years.. but you never know. The Lord has blessed us so much and Henry was given a blessing that said he would over come this disease and he would grow to be a young man, and serve a mission. I have faith that the promise will be fulfilled, whether it's in this life or the next. I'm holding out faith that it's this life. That we will see him grow and serve the Lord and teach others about the gospel. What a great blessing that would be. He so tender hearted, and sensative. I have to be careful how I talk to him, because if I raise my voice at all it makes him cry. :) I can't tease him either. But he's doing well, he's a fighter.

We all miss Daddy! Wish he could stay with us. Thanks for feeding him Laci! You're the greatest! Much love to all our friends and family.