Henry is doing so much better! They drained all the fluid, took the catheter out and the echo's are showing that the fluid isn't coming back. There is still a pocket that didn't drain that they may go back in and drain. The best news, it's not LCH, it's not GvH, it's not infection!! So you say what is it?! That's what they are still trying to figure out.
Henry is just a continual puzzle to these Doctors, but they work so hard to take great care of him. I am so so grateful for the wonderful NURSES and Docs that help with Henry. They make the hospital stay easy and they always make me feel confident in their abilities. And they all love Henry. He's not needing any blow-by anymore unless maybe when he's sleeping, and he's back to his usual self, getting tangled in the mass of cords he is hooked up to.
His new favorite drink besides water...Mountain Dew
Oh and he ate all the jelly out of his PB&J sandwich. First time he's really eaten like that in forever! I guess some good comes of starving a child for 36 plus hours!
So we can all rest a little easier now, he's doing wonderfully.
P.S. Some of our friends are going home tomorrow and we're so excited for them! Yeah for successful transplants! And I just want them to know we will really miss them and they will always be in our prayers and thoughts! Good luck! And I hope the transition home goes smoothly. Please give H. Big hugs for us! Elizabeth will miss him tons!