Henry has decided that it's much more fun to be inpatient during the Holidays. On the 4th of July we were admitted before transplant, then after being discharged he went back inpatient the day before Halloween, and then yesterday he decided to be admitted again. We were scheduled for a blood transplant, but Henry reacted to the blood for some reason. His blood pressure was really high and he spiked a fever, even after getting Tylenol. On top of which they drew a CBC and found that his counts had all drastically dropped. Henry's ANC dropped from 1900 to 420, and all his cell development with in the marrow had dropped to ZERO. Which means that his marrow was no longer producing anything...which said to me the LCH was back and was rampant in his marrow.
I'm not sure why I get so upset when we have to be admitted, maybe it's the lack of control, whatever the reason I always get upset and with his counts being that low I was devastated to say the least. I was completely ready to face another transplant if his counts weren't coming back in, I was not prepared to have the LCH come back so quickly and so strong.
So we spent most of the day up in the HemOnc clinic, getting lasix and meds, before being admitted. Mom and Dad took Elizabeth, who was also upset by being separated from Mommy and Henry, to cook some sort of Thanksgiving dinner. Thank heaven for that, I was NOT going to eat cafeteria food on Thanksgiving!
I do have some good new though... after getting some GCSF, an immunity booster, yesterday his counts recovered to well over 2000. And everything else looks good too. That doesn't mean that the LCH isn't there, but at least his marrow isn't completely shut down. We did have one of our favorite nurses to greet us and she was wonderful and made sure we had everything we usually like! Thanks Megan! And he got to flirt with all his other girl friends. I figure he has spent most of his life with them anyway, so holidays with the family means being inpatient with his 'family' haha.
Elizabeth and Mommy got their flu vaccines today, H1N1 and regular flu shots. Elizabeth watched me get them and said "Mommy you didn't even cry!" Then it was her turn and she screamed so much every one in the hospital knew she was getting the shots. Poor thing needed her Daddy to help her, Mommy just tried with all her might to hold her still. She some how made it through two shots, scared all the kids in line behind us and cried all the way home. We took her to the park to help her feel better and she ended up falling down in the mud and getting soaked, so we went home for a warm bath. Juliann, I thought about sweet little Reece, because the band aids fell off in the tub and she said "mommy they're all better now!" And decided to rip my band aid off, because mine was better too. Silly girl!
Well Henry needs a bath before bed... he's back to his normal self scooting all around the floor and playing with Elizabeth. One night inpatient was enough for him. Although we were inpatient, I do realize how full my life is, how blessed we are every day to have Henry and Elizabeth, and to be together most of the time. We are ever so grateful for the medical staff that looks after Henry and does their best to care for him and help him get better. He looks amazing, and is growing every day... today he's 20 months old!! But more than anything I am grateful to my Savior, for carrying me through this trial, I could not have made it this far, and could not go on with out his strength and love. What a miracle the atonement is in all our lives!
Well, at least you can start making Christmas plans now since you know where you will probably end up being that day! ;) Poor guy. Happy 20 month b-day, Henry.
ReplyDeleteI'm glad she and Henry are all better!! I'll have to tell Reece about Elizabeths band aid. He'll think that's cool. We are coming home tomorrow night so I'll call you on Monday! I'm glad you were inpatient for only a day! He probably missed his girlfriend Megan too much.
ReplyDeleteHappy 20th month bday henry we sooo love you!!! So very much!!!!
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