Bit of Good News

Yesterday we met with the Doctors and got some good news, his CMV is at zero again! His counts, while being suppressed by medication for the CMV, are still over 2000. He's still requiring blood and platelets every few days, but now that the CMV is gone he may be able to keep his counts a bit higher. Also we're going to test his steroid levels next week and see if he can get off another medication.
Today seemed like the day he decided to get up and go! Instead of sitting in the living room to play, he started scooting around the halls and into the bathroom, where Elizabeth decided to give him bathroom cleaner, don't worry Mom was watching them. :) He's still hooked up to the backpack with his feeds 24/7 but doesn't stop him, he scoots until it pulls tight and then pulls on the cord to get it closer, and then scoots some more. The other day Elizabeth was jumping on the couches and when she got done Henry kept trying to get us to help him jump on them too! He wants to run around the house with Elizabeth more than anything! Being home has been really really good for him, and he's just getting stronger and happier every day.
I asked the Doctors about the six month waiting period for transplants, and they said if he's looking this good they still won't do the transplant. We're going to keep a close eye on him and the disease, making sure that it doesn't start acting up again.
While I really wanted to be home for Christmas, I don't think we'll be there this year. We are gonna have to wait around and see how his body responds. I love watching Henry discover new things and new ways of communicating. He's almost got "mom" in sign language down, we're still working on it. He's such a happy beautiful boy and I'm so blessed to have both of my wonderful children!!!