Saturday, November 14, 2009

Mommy's new hair cut, and Elizabeth trying to smile with her eyes open. Silly girl. Still working on that.
HONK! HONK!


Cuddle time with Grandpa, one of the few times Henry wasn't demanding to be held by mommy. He's slowly adjusting to Grandpa and Granny Annie taking care of him too. Henry and Elizabeth are having issues with sharing mommy right now, and so it's been a very stressful few days! But I think we're finally over the initial adjustment.



I just love his face, he knows what he wants and tries very hard to use his adorable looks to get it! Smart boy!

So here's where we stand as of yesterday...Doctors said that the sample size is normal for a baby, and it's a huge bummer that there were histiocytes in the bone marrow. There is usually six month period between transplants, so Henry has until February to get his counts up, and his marrow recovered. We will continue to watch his disease at this point and see what happens. While I dislike waiting, and the idea of being here much longer, I greatly appreciate the sense of an end date. He's doing great today, happy as a clam, just needed some sleep and some blood. So we'll be doing clinic appointments every few days and then transfusions as often as needed. We are hoping that as he gets off the meds that are suppressing his counts, he'll do much better and need fewer transfusions. And every month or so we'll probably do work ups on his marrow and everything else to see what's happening.


1 comment:

  1. Love seeing Henry with Grampa Elmer, honk that nose Henry! Keeping you in our thoughts and prayers as usual, Betty :) (ask your mom she knows) Gar says hi to Larry and Laurie

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