Up to Date

Tried to upgrade Henry's formula to an age appropriate level, it was lactose free because of his sensitivities. However, it looks like Henry is actually allergic to milk. Different in the way it handles in the body. An actual milk allergy messes with the immune system, an over zealous response in sues and in Henry's case, bloating and severe cramping. The last few nights, well five or so, have consisted of Henry screaming non-stop. During the day he's much more content, it's just night time that he seems so uncomfortable. The Doctor gave us some gas medication, and we increased his morphine frequency, and so far so good.
We have made it almost two weeks with out a transfusion!! Awesome progress. We may end up in the clinic doing a transfusion on Christmas or Christmas Eve, but two weeks is such great progress!
Henry started Occupational Therapy and Physical Therapy today. He's not really excited about some one else playing with him, or making him do things he doesn't want to but hopefully he'll get used to them and start making some great progress. He took a few steps on his own with the help of a walker, but then got mad and sat down. Baby steps...literally. :)