Hospitals make us worse?!

So on Wednesday last week Henry was throwing up, which I believed to be caused from a missed dose of Zofran. However, with fevers and vomiting they admitted him and took him off his feeds and put him on TPN which is basically nutrients and fat. So he doesn't lose weight while he is off his formula. All the fluids made his belly swell, which caused more concern and he was in great amounts of pain on Thursday. He wasn't able to move with out screaming in pain. Not usual. So they took x-rays of his abdomen and we did a really cool gut test, where they take quick pictures of fluid being put into his stomach and then watched where it went and how his intestines were working. All they found there was gas, constipation. However after asking them repeatedly about his back, they finally looked at the x-rays to see if his vertebrae were any worse. His fractures start at L1 and go to T9 or something like that and are getting much worse, to the point he can't sit with out much pain. Finally yesterday they gave him mirilax and he had some good dirty diapers and his tummy relaxed a bit and he was in less pain. Miracle... happens pretty much ever time we're admitted I've never seen doctors so excited about gas and poop!!! Last night he had some Oxycodone and Methadone with in an hour of each other... both basically relax you.. so together maybe relax you too much. He set off all the alarms because his oxygen levels were low, and they were so concerned we got more x rays of his chest and he was put on blow by.. a blue tube of oxygen that blows by your face, much better than the nasal prongs that go in your nose.
I know it's all a bit jumbled together... but in our eyes we were fine Wednesday got admitted and then got progressively worse each day. I keep telling myself that there is a reason we needed to be admitted. And I think we've figured it out. The compression fractures are much worse than they were in January and while his bowels are still acting up nothing is wrong with them, but we are going to have to sit down with the Doctors and talk about where we are in the treatment and that we'll probably need to vamp up his chemo treatment if we're gonna make any progress. He's been doing well but pretty much plateauing.
The only issue the doctors are left trying to figure out is whether or not to put him onto bone density drugs, or just to increase his calcium and Vitamin D to help build his bones back up. Steroids every other week is a bit much for his body and could be what's causing the back to get worse. On the other hand the Ortho guy feels that it's the LCH causing problems with the back. So once we get that sorted out we'll know what we're gonna do. They are gonna fit him for a brace to wear so he isn't allowing the vertebrae to slip or get worse. Hopefully. So in a nut shell That's what we've been doing the last few days.
Joel accuses me of making the blog seem like we're on a vacation... I like to focus on the good days rather than the bad ones... so when we get out and play and have fun I'm more likely to take pictures. I don't want Henry remembering how horrible he felt and how rough things were. We are so blessed and have so much to be happy about. Watching General Conference only built my testimony of that fact. While our trial seems insurmountable to others, the things they are enduring may seem overwhelming to us. The Lord knows us and gives us trials that He knows we can handle, he doesn't doubt we have the strength only we do. We learn from our trials we grow from them and hopefully at the end of all this my testimony will be firm and I will have learned what the Lord intended me to learn. I can not say enough that we have been so blessed and I know it's because of all our friends and family that are praying for us and putting little Henry's name in the temples. My heart is full of gratitude to the Lord and all of you! Much Love.