Treatment Update

Well Henry finished his 6 day Chemo round or cytarabine and cladrobine. It was a hard week, lots of pain and nausea and lots and lots of fevers. We're hoping that in the next few days the fevers will subside and his nausea will go away. As of today he's regularly on adovane, Zofran, and a benedryl reglan mix, on top of his methadone. So when he has a fever in the evening he gets all this medicine and then is pretty much out of it for a few hours. Haven't quite figured out what's causing the fevers; with LCH he has fevers frequently, just the LCH flaring, the chemo he was on also causes fevers, and he has coughing fits where he's puking up lots of mucus that also sets off fevers. I'm getting a bit anxious and frustrated, having to watch Henry go through this stuff. I guess because I can't figure it out, I'm praying the Doc's will have an answer soon, or that will a few more days the fevers will subside as all the chemo is released from his body.

This morning he got really excited because I went back to the RonDon and made a smoothie...soo good mom!... and he loves them. So we shared some smoothie and I brought over his favorite toys. We tried playing for a bit but he was too tired.. medicine time.

So now we just wait, keep giving him platelets, blood and IVIG, until his body can produce those things on it's own. I guess it's hard this time because the Chemo Henry went through before didn't effect him as bad. New experience.

He really loves his Nurses and they all love Henry, we are finally out of Isolation!!!!! YEAH! So we can walk the halls, which really excites Henry and Mommy! We walked yesterday until our oxygen tank was empty.. oops. Chatted with all the wonderful nurses and got some exercise.

Well that's all for now, I'll be sure to update his progress. Much love to our friends and family!! Thank you all for your prayers.