Steps Forward

Chillin' in the bed... Look at that belly... yep it's smaller :)

You would think I caught them off guard...no they knew I was taking pictures and refuse to just smile nicely for a picture. :) Henry is sitting on the 'lily pad' on the bottom of his pole. And those scissors aren't sharp... and I know she looks like she needs a hair cut.. but she decided she wanted to grow out her bangs like Mommy.

In the last few days...

Henry's Cyclosporine has been decreased

So has the morphine, 1 ml every other day

Lipids (fats) have been turned off... he's on a calorie reduced diet

Tested positive for Rhino virus (cold), just has a runny nose and the sneezies

Discovered the floor is as slick as the tub, so he can scoot along the floor

Acquired a "lily pad" for his pole so he can ride around with his pole

Feeds have been increased to 35 as of today

And the PN (IV nutrition) has been turned off completely!

Joel worked his "Dad" magic and convinced the Doctors he was right, not the nutritionist

So hopefully in the next few days we'll see improvements in his liver functions along with a decrease in the over all size. He's only hooked up to one of the two lumen's on his Hickman line. He's so active and happy most days, and LOVES chasing Elizabeth around. Although they hate to share toys they really enjoy having a playmate in one another.

Oh yeah and today he said "Meow". First word, and Grandma is my witness. And no he won't say it again. Although he was mighty proud of himself. He LOVES his nurses and he says 'Hi' to his favorite cleaning lady, snack lady and Doctors. He blows kisses to all the girls but stays loyal to him momma. :)