So after a wonderful transplant day, Henry had a really rough night. Joel and I didn't get much sleep at all, Henry probably got less. With Methadone, Morphine, Ativan, Benedryl, and a repeat of many of those, he still couldn't get comfortable. UGH! Many times the DMSO causes a lot of GI problems, pain and irritation. So tonight we're working on doing both TPN and formula. (Nutrition via IV and formula) On top of all that, he's retaining tons of fluid so his face is horribly swollen, pictures don't quite show the extent of it. This morning after ONE dose of morphine he zonked out at 9:30am and didn't wake up until 2:30pm. Pretty much comatose. :) But he definately got the sleep he needed. Thank Heaven! And Joel and I got a good nap in as well.
Swollen eyes and face.
A litte upset... why you ask...
Because his legs are getting chunkier and so the name band is getting tighter. I love his beautiful hair. So far it hasn't fallen out. The nurses say it takes a few weeks.. I say Henry has already decided he's hangin on to it. :) A year of chemo and still hasn't lost any... we'll see what happens. I'm just so grateful to our friends and family that have included us in their prayers and thoughts..you have truely blessed little Henry with much needed strength and encouragment.
Hi guys, So glad to see that the transplant went well. Our new mantra is "Bad breath is GOOD!!!" It was wonderful to see you this Sunday. You and Henry both looked great...especially Henry's hair..LOL
ReplyDeleteJenny and I got home to Kodiak after several days of waiting on weather. We are praying that your marrow will Kick In big time Henry>
Jimmy Ng
keep trucking along henry you are almost there and sooo tough. we love you so very much and can't wait to kiss that cute face of yours swollen or not!
ReplyDeleteHe's so adorable! You are all in my prayers! I can't believe what a tough little guy he is! Ryan is very impressed that such a small little guy could go through something he did and felt like quiting! What a trooper! We love you so much!
ReplyDeleteWe just love you and want all to be well, hang in there, we are pulling for you all every day, you bring us such strength so we will give a bit back through our prayers, Terri and Gary
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